After a couple of good days, Ryan had a disturbed night and has been sleepy for most of the day. He was awake and alert late this afternoon but smiles were hard to come by. This picture was taken on Thursday and shows Ryan, with his new England coat, looking quite like he used to pre Manchester.

A good day today with plenty of smiles to send his visitors from Ireland back home feeling happy. Ryan is now receiving an hours "schooling" each day at home. It is provided by those wonderful people from Springwater school, who have kept in constant contact over the many, many months since he last went to school. 

This was Ryan yesterday when his teacher got him ready for the Jubilee celebrations.

An exciting day for Ryan with visitors from Ireland and Ware coming to see him. He was not in a smiley mood but he looked relaxed and there was plenty of eye contact. The picture below shows him in 2006 with his beloved Laura and the one above today with her having just qualified as a Doctor. We (and Ryan) are all so proud of her.

A different day today with plenty of smiles. The treatment went well. There was a bit of a problem when his temperature hit 28 but slowing down the ERT flow seemed to help.

After his two not-so-good days, Ryan has had two good nights followed by two good days. This follows a slight change to his medication.

Not so good for Ryan over the last two days. Lack of sleep and a lot of diarrhoea. I just popped in to see him at lunch time and Fiona was about to take him out in his wheel chair, this in the hope it would wake him up. I then had a magical moment - I gave him a kiss on the cheek, he slowly opened his eyes, gazed into mine, and gave me a really big smile. He then went back to sleep.

This was Ryan this morning awaiting his Enzyme Replacement Therapy. He was like this for most of the morning. It was particularly unexpected as he had not had a good night. We had trouble getting a receptive vein but once we did everything went well.